Well, week one with a new port could not have gone better. Noah did so well during surgery and recovery was so much better this time. He was already back to school by Wednesday afternoon and by Thursday and Friday he stayed the entire day. He is feeling good, had a few bumps into on the bus, but overall, really good. He touches it and says it feels like there is a little ball in his chest. So, I tell him 'don't touch it!'. He is my child that cannot leave anything alone. He likes to pick at stuff until it breaks, so let's hope this new port doesn't fall victim to that too!
So far we really havn't seen any side effects from the new round of chemo started last Tuesday. He complains a bit of a sore throat so hopefully that's not the sores starting. We go again on Friday Sept 21 for his next chemo treatment.
We are still seeing some negative feelings that he has towards Holly, and that's hard to deal with. He has also been disobedient for Chris and I and that's also hard. It feels different now to punish him, yet we know that we need to.
Again this week we have felt the kindness of a stranger. It is absolutely unbelievable how we have been supported. It's so overwhelming and it just brings me to tears thinking of it. I have a little more hope that I will be able to pay it forward in the future now. Until now, it was hard for me to visualize what life was going to be like. I felt so incompetent for the first couple months. Now, I feel like I am starting to get back to myself again. Starting to feel our way around what life with cancer is like. For now anyway. I know that things can change very quickly, especially with chemo. So, we take each day as it comes. I don't like to say one day at a time. That phrase is starting to bother me. It's not easy to take things one day at a time. I don't know, maybe it's just my sleep deprived brain talking crazy again.
Prayer requests: Complete healing for Noah, that he will be cured of this cancer and it will never return. That he will be nicer to Holly and more respectful of Chris and I. That I will be more patient. That the side effects will be so minimal that we don't even notice them. That Noah will be able to attend as much school as possible and able to play hockey this winter. That Holly will do well at pre-school and not feel too left out in all this. That Coltan will continue to be my sweet bestest little baby:)
Thank you all