On July 4, 2012 we brought Noah to Children's Hospital because he was pale and not recovering well from strep throat which he had the previous week. We assumed it was just the strep that wasn't going away, little did we know it was actually Leukemia.
Even though it was not totally confirmed that this is what Noah had, the ER doctor had a pretty good idea, and figured that the doctors in Steinbach suspected Leukemia as well. Which was why they sent us to Children's.
This brings us to the moment, where the doctor comes into the room and tells you that what our son most likely has is cancer. Wishing that we could just pretend that we didn't just hear that, instead we are plunged into this horrific reality.
We are brought up to our room which we will likely spend the next 10 days or so in. Noah is excited because it has a PS3 in it:) That night Noah received a blood transfusion, and alot of fluids. He got an xray as well.
The following day Noah had a bone marrow extraction and a lumbar puncture to determine how much Leukemia he has. His bones and blood contain nearly 100% of leukemia. Which explains the paleness, lethargy and bone aches.
From there we start Chemotherapy. A shot of chemo was already injected during the LP because that is where leukemia likes to hide, in the spinal fluid. We later learned that Noah does not have any leukemia in his spinal fluid, but will continue to get shots there to be safe.
The bone marrow was full of leukemia. Leukemia is cancer of the bone and blood, therefore, Noah has it everywhere.
From there we go day by day regarding chemo. Each day is numbered, today is DAY 3. On day 29, Noah will have another bone marrow extraction and they expect to see less that 1% of leukemia in the bone. Yes, you read that right. The first month is intensive. After that first month, it will take 3-3.5 years to kill the last 1% of leukemia. This does not mean it will be easy, even though the amount is small.
The side effects of chemo seem outrageous. And it feels like we are pumping him full of chemicals that will change him into someone else. We should start to see them soon. The big one that everyone asks is will he lose his hair? Yes, in about 2 weeks. And it may stay like that for the remainder of the 3 years.
Noah is ok. He knows he has cancer, so please don't feel like you can't say the 'c' word. Holly also knows he has cancer. He is sad at times because we were suppose to go camping, not stay in the hospital. Otherwise, he feels optimistic. I asked him if he thought he was going to die, and he said "no".
Chris and I are hanging in there. Its hard. More that I can even describe. Your prayers and willingness to help us does not go unnoticed. We appreciate all that you are doing for us.